Sunday, May 26, 2013

Any toy Gift Ideas for a Disabled child????

Q. I have a disabled almost 3 year old family member. He has down syndrome, so most of the product toys for his age group don't fit him. He cannot walk yet because of very poor muscle tone, and has limited interest and ability for toys for his true age. I already got him a whole new wardrobe and would like some toys. Any help??? What would really help him?

A. My sister turns three tomorrow and she has down syndrome. Interactive things are always good for these kids. Things with music and lights. Dont feel bad going into the infant secton to find a fun colorful toy. We usually get her things that fir 12-18 months. We found the Hasbro Playskool Step Start Walk n ride was great to help her working on mobility. She loves her infant bowling set. Depending on his weight you could consider a bouncer to help work on muscle tone.


1 year old toddler cant speak a word?
Q. My kid is now 1 year and a month old. He cant speak a word. He can listen even a pin drop. I am very worried, maternity nurse said he will be ok. I have seen many kids who start talking even before the age of 1 year. He had DownSyndrome test but it came negative.

Please advise what should I do...

We have no elders to guide us here.

Thanks
He makes noise like dadadada every time

A. I'll be your son was an early walker and probably started getting around on his own by 11 months. right? It seems that infants fall into one of two categories; they either talk early, which means they can get people to do things for them, or they walk early, which means they can get around on their own.
Why did you have him tested for Down Syndrome? Does he have the facial configuration that is typical of Down syndrome?
You say he makes a sound like, "dadadada" - and that type of vocalization is the precursor to speach. Try spending more time talking to him -- dada, mama, milk or water - (which, in baby talk, would be mmm or wawa) and perhaps holding his favorite toy close to him and using the name of the toy.
Above all, be patient. If he's normal in other aspects, slow speaking ability isn't something to worry about. Some children don't start talking until they are around two -- but then they go like a house on fire and catch up with the early talkers.


My niece was born 3 days ago with a twisted foot (looks clubbed) and is doing wonderful...?
Q. she is breastfeeding and everything...she looks beautiful but is a lil flat faced with squinty eyes.. and has darker skin (hormones?) and really black hair (not in either fam) but the dr. came in on the second day and asked if there was an asian bloodline (no) and they suspected down syndrome.. has anyone experienced.. her tests come back today... there is no one in either family ...

Has anyone had anything like that happen .. work in medical ... could it possibley be something else.. I looked up the signs and I understand but can this be something else or nothing..

she did push for three hours.. and there was a large fluidy mass from the vacuumn..

A. Hair color, skin color is not a problem at all, it may change after sometime, and may not. If not some genes must there which dictate that. The main thing is the flat face and twisted foot that you mentioned. You see down syndrome kids not only exhibit behavioral differences but mostly exhibit some bodily defects or notable differences from normal persons at birth itself. This is why doctors recommend not to have kids late because it increases the chances of birth child defects and down syndrome in children by 3%. Genes are the things, which are in the chromosomes, that tell the story of the human body, who its to be built, but after some age aberrations come in human body, because of which kids in late age is not recommended.

My fathers very close friend has a child, a girl who was born when her mom was 35 or so and was detected down syndrome at birth. She has a flat face, somewhat a very big forehead and big popping eyes, which sometimes really scare me (God forgive me I shouldn't say so). She is now 23 years, and does some stuff by herself, like going to the restroom and some other things, does small things like if her mom asks to bring some stuff from the kitchen she does so, brings a glass of water if asked, but becomes very slow, walks very slow then not to drop it. She doesn't understand any normal social human relations or matters. She likes caroms because we always give her the red coin upfront itself to make her happy. Whether we coin or anyone else, all coins go to her. Her mom cries sometimes that what will happen to her if something happens to them. When she was small kid, like even till 6 years or so she used to urinate in her pants, and even get the other things also in her pants. Her mom had a very difficult time making her learn she should go to bathroom, restroom, tell her she is hungry if she feels hungry and every small bit of detail of everything. At the age of 10 she was somewhat ok. By that time she knew alphabets, she could tell alphabets with the help of her mom telling whenever she missed some. That's all she learnt till now.

Down syndrome kids generally don't live long and sometimes when they do live long but become a burden on parents, as they are like inferior to infants at mind all their life. In most cases they develop heart troubles and die. I not speaking bad about them, but I am being practical. When they live long, the parents spend much on them and if they live even after the death of their parents, it becomes a trouble as they won't listen to anyone except their parents. I know this as I used to volunteer work and donate whatever I could to a local school for down syndrome kids, most them who were abandoned and the school needed money to run. One of them was my favorite, a kid (a big kid) who always wore a loose old shirt and an old pant and always used to sit on one side of see-saw and didn't sit with anyone on the other side. If you tried to play on that he would just fall down back as a brick. I got him some good clothes from our home (used ones though) but he never wore them, as the warden who left the school told him once always to wear a shirt and him an old loose shirt. He used to listen to that man who taught him everything. The warden told him to wear a shirt, but the kid always wore only the shirt the warden gave him and nothing else, may be he understood it that way, I don't know.

The tests should reveal the facts. But some observeble characteristics are, if you place them in a cradle and if there is toy or something hanging from the top of it, rather than trying to touch it and pull it, they constantly look at it, and also look at it for hours together, don't cry also during this time, even for hunger. If a bunch of toys/dolls are placed they look constantly at one toy all the time. You can sometimes see a difference at the way they see. Sometimes it may not be oberveble the very first time, but should be kept in constant observation, the way the child plays, is the child active, does the child ever attempt to walk, the way the child sees, is saliva dropping out of the child's mouth constantly and the child just sits and sees somewhere as the saliva is dropping (not in sleep, many children drop saliva in sleep).

I will pray that everything should turn out to be fine. For the foot a plastic surgery or something should be possible, its OK, not a big deal as long as the kid is OK mentally. This is life deciding.





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